I Am One of Many People Living with Hidradenitis Suppurativa

Let me introduce myself: I am one of many people living with Hidradenitis Suppurativa.

My name is Luca, I am 25 years old, and I have been living with Hidradenitis Suppurativa, HS, acne inversa, or Verneuil's disease for about eight years. When I first searched the web, I found too little information and, above all, too few places or forums where people could connect and compare experiences. That is where the idea for this blog came from.

Why Start a Blog About Hidradenitis Suppurativa?

• To build a community and give a voice to the many people like me who live with an often overlooked autoinflammatory condition. I would love each of you to share your story. You can do so by writing to me through this form or directly on Facebook
• To share information, research, and the things I have personally tried while looking for ways to manage this condition

For Informational Purposes Only

Of course, I want to make it clear that everything shared here comes only from my personal experience and my desire to understand and manage Hidradenitis Suppurativa. I work in business consulting and I am not a doctor or medical professional. My knowledge comes from reading articles and books and trying certain approaches on MY OWN skin. Nothing on this blog is medical advice, and I do not want to take the place of your doctor or dermatologist in any way. I simply want to offer a different perspective and help readers explore possible ways to manage the condition, while recognizing that HS has no definitive cure.

Recently, after my condition flared again, I could not accept the idea that there might be no other way to manage acne inversa. I wanted to explore options beyond relying only on repeated courses of antibiotics, corticosteroids, or immunosuppressants, which in my personal experience did not always bring the relief I hoped for.

So I began looking for as much information as possible by reading books, searching online, and watching YouTube videos. One of those videos gave me a small sense of hope, which I will tell you about in the next posts.

My Hope of Building a Community for People with Hidradenitis Suppurativa

I also wondered why this condition was still so little known and why there was no place where people could connect, tell their stories, find comfort, and feel understood and accepted.

And here I am, ready to tell my story, or rather our story. I hope that together we can raise our voices and make ourselves heard more clearly. After all, I am simply one of many people living with Hidradenitis Suppurativa.