I've suffered from this disease for years and, despite constant dermatological and medical visits, no one managed to explain so many concepts about Hidradenitis Suppurativa the way this book did. The author instils strength and confidence and, even though it isn't a manual written by a doctor, it doesn't lack scientific information. It covers topics that are hard to find anywhere else, like which foods to avoid and why.
A Hidradenitis Suppurativa memoir and practical method, written by a patient
15 years with Hidradenitis Suppurativa.
I am now in remission.
Here is what I learned.
Flare by Flare: A Patient's Hidradenitis Suppurativa Story of Elimination Diet, Reintroduction, Tracking, and My Remission. Across 235 pages, I share my experience and the method I followed, with 145 cited sources.
★★★★★ 4.8/5 · Average reader ratingWhat you get
- PDF and EPUB eBook, with instant access
- Updates to future editions
- Bonus: free lifetime access to our patient Telegram community
- Bonus: Printable Reintroduction Journal (PDF)
Essential reading for anyone living with HS.
F.C. · reader review
Shared experiences
Three real patient journeys, documented over time
Before
After
Before
After
Before
After Individual experiences shared with the consent of the people pictured. Results vary from person to person. These images are not a therapeutic promise or evidence that the same approach will produce the same outcome for anyone else.
A professional and personal perspective
Giuseppe's review: nutritionist and fellow HS patient
Giuseppe has a degree in human nutrition, and his work focuses on nutrition in the context of chronic inflammatory and immune-related conditions. But his connection to Hidradenitis Suppurativa is personal too: he lives with HS himself. In this video review, he shares what he found useful in the book, speaking both as a nutrition professional and as someone who knows HS first-hand.
With the eBook, you also get free lifetime access to our Telegram community. Giuseppe moderates the group and shares general educational guidance alongside peer support. It is not personalised nutrition or medical advice.
It is the book I wish I had read on the day I was diagnosed.
Giuseppe, human nutritionist and HS patient, from the video review
Written by a patient, for fellow patients
I know the fear of not knowing what comes next.
For years, HS took up space in every part of my life: my body, my thoughts, my relationships, and the choices I made each day. I kept looking for one clear explanation, but mostly found scattered questions and information that was hard to connect.
So I began reading, observing my own patterns, and comparing what I was living through with the available sources. This book brings together what I learned, what I tried for myself, and the questions worth exploring with the healthcare professionals who know your case.
Who this book is for
I know how this can feel. You may be frightened by the thought of HS getting worse. You may feel exposed when you undress in front of your partner or wear a swimsuit. The scars can make an already heavy condition feel impossible to forget.
And yet you are here, reading. You are looking for a clearer way to understand what is happening and for something practical you can do with that understanding.
I wrote this book first and foremost for people living with Hidradenitis Suppurativa, and for anyone trying to make sense of life with a chronic inflammatory condition.
Living with HS is not something you can solve through willpower. What you can do is stay curious, learn from reliable sources, notice your own patterns, and make informed decisions with the professionals supporting you.
If you are looking for a guaranteed answer or someone to tell you to stop prescribed treatment, this book is not for you.
If you are tired of feeling caught off guard by the next painful lump, boil, or flare-up, and you want a calmer way to track what may matter in your own life, you are in the right place.
I will share what I learned and what I tried for myself as honestly as I can. I cannot promise that my experience will be yours. HS is different for every person, and none of this is easy.
For me, moving forward meant making changes, giving some things up, and paying closer attention to how I lived. It was a personal process, not a prescription for anyone else.
I stopped waiting for one perfect answer and began working with what I could observe, one step at a time.
I am writing for the person who wants to understand more, ask better questions, and take part in the decisions about their own care.
If that sounds like you, welcome. You are not the only person trying to find a way through this, and you do not have to do it alone.
End of preview, continue in the full eBook, $29
This book is for you if...
- You have just been diagnosed and want a clear map of the topics to understand and the questions you may want to ask.
- You have lived with HS for a while and want to make better sense of food, gut health, hormones, and day-to-day management.
- You want the honest experience of another patient, together with sources you can read and discuss with the healthcare professionals supporting you.
What you will NOT find
- Promises that HS will go away or that any result is guaranteed. HS is a chronic condition, and every person's experience is different.
- Personalised medical advice or a replacement for prescribed treatment.
- A universal shortcut. You will find one patient's experience, cited sources, and practical tools to help you observe and ask better questions.
What is inside the 235 pages
- Find your bearings
Understand what HS is, how it is classified, and the treatments commonly discussed with healthcare professionals.
- What Hidradenitis Suppurativa is
- Hurley stages and other classifications
- Medication and treatment: what I learned
- Connect the dots
Explore the research and open questions around the immune system, gut health, histamine, and skin, with a clear line between what is known and what remains uncertain.
- Is HS autoimmune?
- Gut permeability and the microbiome
- The role of histamine
- Notice your patterns
Look at possible patterns in your own experience involving food, your menstrual cycle, insulin, stress, sleep, and daily habits.
- Nutrient deficiencies and supplements
- Hormones: menstrual cycle, insulin, and stress
- Sleep, movement, and emotional wellbeing
- Experiment methodically
Learn how I approached the AIP protocol, elimination, and reintroduction, with practical ways to organise and track changes alongside qualified support.
- Day-to-day wound and skin care
- The AIP protocol: elimination and reintroduction
- 10 recipes to help you get started
Inside the book
The questions this book explores
- What I learned about antibiotic treatments for HS, their limitations, and useful questions to take to your doctor
- What researchers are investigating about the gut-skin connection, and how those ideas changed the way I observed my own experience
- How I began noticing possible links between insulin, the menstrual cycle, stress, and flare-ups without mistaking coincidence for cause
- The 5 supplements I researched, what the sources say, and why it is important to speak with a qualified professional before taking them
- How the AIP protocol is structured: elimination, reintroduction, and practical ways to track what changes
- How I handled dressings and scars day to day, and which aspects should always be discussed with a healthcare professional
- The chapter that changed my perspective: how I moved from searching for one answer to building a more informed, sustainable process
What you get with the eBook
- The complete book in PDF and EPUB: 235 pages, 10 chapters, 145 cited sources, with instant access
- Updates to future editions, included
- Bonus: free lifetime access to our Telegram community, moderated by Giuseppe, a nutritionist who also lives with HS. He shares general educational guidance, and the group offers patient-to-patient support. This is not personalised advice
- Bonus: the Reintroduction Journal, a printable PDF for tracking foods, symptoms, and observations throughout reintroduction
In the words of readers
What readers are saying · ★ 4.8/5
Great insights, and everything rings true because it's been lived. I highly recommend it.
Beyond providing precise, meticulous information on the origin and progression of the condition, it gives the reader a deep sense of hope, offering those with the same condition plenty of practical advice.
A real, first-of-its-kind guide to this condition: how, when and why it gets worse or better. It's not just theory: there's practical advice on how to improve your health. What great work!
I was diagnosed with this condition not long ago. This book is a wonderful opportunity for anyone who wants to understand their condition fully and consciously. Well done Luca!
A necessary handbook for anyone with hidradenitis, or anyone who wants to dig deeper. Useful advice for a holistic approach to the condition!
I have this condition myself and found the read very useful: I learned how to prevent, manage and cope, psychologically and behaviourally, with these little 'friends' of ours, the abscesses. I recommend it to those who suffer from it but also to their loved ones, to support each other and face this together.
Reader reviews: the cards shown are a selection and reflect each reader's own experience.
You deserve to understand what is happening.
When HS changes how you feel about your body, your relationships, and your everyday life, a clear map can make things feel less confusing. This book brings together what I learned through my own experience and the sources that helped me ask better questions.
Start readingRead the book I wish I had at the beginning.
PDF and EPUB eBook, plus the Reintroduction Journal and free lifetime access to our patient Telegram community.
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